Newbie

Hi all my name is Jim and I am about to start taking Byetta I will be
lurking a bit to catch up on whats been discussed. Thanks
Jim

36 Responses to “Newbie”

  1. Melvin Anh Says:

    Hi Jim,

    I’m Marsha - I’ve been on Byetta since March 22nd. I’ve been doing pretty
    well on the spit.

    My weight rollercoasters, but is overall heading down. I’m not one the
    spectacular weight loss people, but consistant.

    I don’t have a lot of gasterointestinal upset but I’ve gotten to the point
    that late night tests means that taking Byetta at 8:30 p.m. to eat means not
    sleeping until 2 a.m. because if I eat more than a bite or two at dinner and
    then try to lay down I blow up like a balloon with gas. Too bad I can’t market
    and and sell it or I’d be rich.

    My BG is much, much better than it was before. I’d like it lower, but with

    weight loss continuing and my intake remaining very limited in carbs and
    calories I will help resolve most of my insulin resistance and the numbers will
    finally get into the normal range of about 85 on a consistant basis.

    My dear husband is also on Byetta. He takes 5 mcg only once a day and has
    wonderful BG. He is on no other medication for diabetes (only supplements). He
    has no side effects at all.

    Good fortune to you on your journey with Byetta. As with so many things in
    life, it is a journey, not a destination.

    Cheers!
    Marsha

  2. Dwain Palmer Says:

    Hi,
    I finally got my doc to prescribe Byetta. I’ve been on Lantus, Humalog,
    and Glucophage (2200mg daily) for a long time (Ultralente prior to
    Lantus being available). Control has been good-A1c anywhere from 4.9% to
    the latest 6.3%. It’s slowly creeping up as both age and time with
    diabetes progress.

    Anyway, the prescription has gone in for the 5mcg pen (mailorder as
    usual). I’ve been lurking here, and have read the Byetta web site. I
    know you take this just before the breakfast meal, and the dinner meal.
    For me, that would be around 7:45am, and 4:15pm. I’m wondering if there
    is enough space in between those times (around 8 hours). Being retired
    things are pretty much done the same as far as meals go.

    I’m hoping that this is going to work as it took some convincing because

    the doc wanted to add another pill (Actos), and I’ve enough of those
    already. I’m probably 20lbs overweight at best so I know I’ll be doing a
    lot of BG testing.

    I’d appreciate any comments?

  3. Darrin Kelley Says:

    Welcome, Dave. I had to argue with my doc to prescribe it, too. I think he
    gave in just to shut me up.

    Eight hours is enough time between dosages, the manufacturer recommends a
    minimum of six. You can take the dose up to an hour before eating, some
    people eat right away after the dose to minimize nausea, others try to get
    closer to the hour mark to maximize appetite suppression — you’ll probably
    have to experiment a bit to see what works best for you.

    Debbie

  4. Randal Cristin Says:

    Maybe that is what I am doing wrong…mine is more like 8:00am then again 7:00pm
    (dinner is usually late).

    Eight hours is enough time between dosages, the manufacturer recommends a
    minimum of six. You can take the dose up to an hour before eating, some
    people eat right away after the dose to minimize nausea, others try to get
    closer to the hour mark to maximize appetite suppression — you’ll probably
    have to experiment a bit to see what works best for you.

    Debbie

    [Non-text portions of this message have been removed]

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  5. Darrin Kelley Says:

    I’m not sure that’s wrong, the six hours is a minimum, but you could try
    changing it to see what happens. I usually eat a small breakfast so I felt
    the Byetta dose was pretty much wasted using it on that meal. My schedule
    is a little skewed since I work second shift and sleep in late, but I save
    my first dose for the bigger meal I have about noonish and then have the
    second one before dinner, at about 8:00 PM. Debbie

  6. Melvin Anh Says:

    Dear Jacqueline,

    Bg=Blood Glucose (as in 85 is normal)

    My dear husband (DH) and I also experience being somewhat chilled.

    Cheers!
    Marsha

  7. Angelita Sharen Says:

    Jacqueline,
    No problem. I’m sorry. I forget that everyone doesn’t know the lingo.
    Bgs stands for blood glucose or blood sugars. Like my fasting bg this
    morning was 91. I still have a little nausea too and I’ve been on it
    since December. As far as the Byetta affecting your appetite you will
    find it does more so with the 10 pen. Also if you wait an hour after the
    injection to eat you will notice you cant eat as much. So if you are
    trying to lose weight try waiting an hour after the shot to eat. I had a
    little more nausea when I started the 10 pen and I am losing more weight
    on the10 than I did the one month on the 5.I also feel cold a lot of the
    time but I believe that is an advantage. I used to wilt in the summer
    heat but now I’m tolerating it well.
    I hope this answered your question. Let me know if there is anything
    else I can help with.
    Blessings,

    Karen

    Karen ,
    i have a question everyone keeps saying bg’s what is that i am
    sorry sometimes i don’t know all the lauguage but i keep seeing
    that alot ! I myself the only side affects that i am having so far
    is a little nausea not enough to be concered with and it does not
    last very long at all but the main one is cold i am freezing and
    that just started as a matter a fact today it has started ! to wierd
    lol ….
    I have a question for you or anyone else who have been on it for
    a while i have only been on mine for a couple of days and it may
    take alot of time but i am right
    now only on the 5 then in a month my doc is putting me on the 10 is

  8. Melvin Anh Says:

    Hi Jacqueline,

    Bernstein suggests checking BG
    upon arising
    before first meal (if it does not coincide w/ above)
    2 hours after breakfast
    before noon meal
    2 hours after lunch
    before dinner
    2 hours after dinner
    before bed

    He suggests doing this for a week to get a baseline of what your fluctuations
    are. Then you start experimenting with carb intake and see what you can eat
    without blowing your BG up. It is what Andrew calls eating what the meter says

    you can.

    In my case, the meter says I can eat no more than 30 grams of carbohydrates in a
    day. I am better off eating about 20 grams of carbs. I’m taking Byetta and
    1000 mg of Fortamet a.m. and p.m. I resist taking a bunch of drugs if at all
    possible because I am concerned about tanking up on things like Actos (which I
    can’t take because I’d develop Congestive Heart Failure if I did) so I’m dealing
    with 120ish bg. I don’t take insulin because of an anaphylatic reaction to
    insulin and an unwillingless to try again and take a step off that cliff for
    good next time.

    In terms of BG I am down in the 120’s and sometimes around my goal of 85 with a
    post-prandial of 95 or 100.

    The more weight you lose and the more control you get over your intake the
    better your BG will end up being.

    Bernstein says not to exercise aggressively when BG is above 170. Can’t
    remember the metabolic reason. Its in his book - which you may be able to get
    from the library or on interlibrary loan. Whether you use the diet or not the
    metabolic information is very valuable.

    I’m unhappy with where I am in terms of BG, but I’m a heck of a lot happier than
    I was when I started out doing byetta last March. Rome was not built in a day
    and getting my body normalized regarding weight and BG will not happen
    overnight, either.

    You may be able to eat more carbs than I, depending on how much medication you
    take and how much you are willing to do dietarily in order to keep your BG under
    control. It varies from person to person. I’m willing to do a whole lot and
    I’m not a vegetarian or vegan so I have more options than others chose to
    utilize. It is neither good nor bad, just is. If you are a vegetarian then
    there are vegetarian low-carb lists. If you are a vegan you’re probably stuck
    with a lot of insulin and diabetic meds as it is almost impossible to low-carb
    and be a vegan.

    Anyway, that’s the basics.

    Weight loss and exercise are key for Type II’s and persons with hyperinsulinism
    like I have just can’t handle carbs much at all without it causing serious
    spikes.

    Byetta won’t turn everything around immediately, either. It is a tool, not a
    magic bullet, but I don’t know anyone who has taken it whom it has not helped
    lower bg so long as they didn’t eat so many carbs they defeated its effects.

    Okay, ’nuff said.

    Cheers!
    Marsha

  9. Lenny Roberson Says:

    It took a couple of months for the byetta to lower my blood sugar to it’s full
    effect. so perserverence is the clue. it does do wonders, but it does take a
    little time. as for asking questions, the first 100 are free, and then we have
    to start charging you *grin*

    Bernstein suggests checking BG
    upon arising
    before first meal (if it does not coincide w/ above)
    2 hours after breakfast
    before noon meal
    2 hours after lunch
    before dinner
    2 hours after dinner
    before bed


    He suggests doing this for a week to get a baseline of what your fluctuations
    are. Then you start experimenting with carb intake and see what you can eat
    without blowing your BG up. It is what Andrew calls eating what the meter says
    you can.

    In my case, the meter says I can eat no more than 30 grams of carbohydrates in a
    day. I am better off eating about 20 grams of carbs. I’m taking Byetta and 1000
    mg of Fortamet a.m. and p.m. I resist taking a bunch of drugs if at all possible
    because I am concerned about tanking up on things like Actos (which I can’t take
    because I’d develop Congestive Heart Failure if I did) so I’m dealing with
    120ish bg. I don’t take insulin because of an anaphylatic reaction to insulin
    and an unwillingless to try again and take a step off that cliff for good next
    time.

    In terms of BG I am down in the 120’s and sometimes around my goal of 85 with a
    post-prandial of 95 or 100.

    The more weight you lose and the more control you get over your intake the
    better your BG will end up being.

    Bernstein says not to exercise aggressively when BG is above 170. Can’t remember
    the metabolic reason. Its in his book - which you may be able to get from the
    library or on interlibrary loan. Whether you use the diet or not the metabolic
    information is very valuable.

    I’m unhappy with where I am in terms of BG, but I’m a heck of a lot happier than
    I was when I started out doing byetta last March. Rome was not built in a day
    and getting my body normalized regarding weight and BG will not happen
    overnight, either.

    You may be able to eat more carbs than I, depending on how much medication you
    take and how much you are willing to do dietarily in order to keep your BG under
    control. It varies from person to person. I’m willing to do a whole lot and I’m
    not a vegetarian or vegan so I have more options than others chose to utilize.
    It is neither good nor bad, just is. If you are a vegetarian then there are
    vegetarian low-carb lists. If you are a vegan you’re probably stuck with a lot
    of insulin and diabetic meds as it is almost impossible to low-carb and be a
    vegan.

    Anyway, that’s the basics.

    Weight loss and exercise are key for Type II’s and persons with hyperinsulinism
    like I have just can’t handle carbs much at all without it causing serious
    spikes.

    Byetta won’t turn everything around immediately, either. It is a tool, not a
    magic bullet, but I don’t know anyone who has taken it whom it has not helped
    lower bg so long as they didn’t eat so many carbs they defeated its effects.

    Okay, ’nuff said.

    Cheers!
    Marsha

    [Non-text portions of this message have been removed]

  10. Neva Marjory Says:

    amen to that marsha

    no way am i giving up the spit. i will (with the help of my witch dr) find
    what must be an underlying cause to my sudden need for more insulin.

    jodi

    It took a couple of months for the byetta to lower my blood sugar to it’s
    full effect. so perserverence is the clue. it does do wonders, but it does
    take a little time. as for asking questions, the first 100 are free, and
    then we have to start charging you *grin*

  11. Neva Marjory Says:

    Jaqueline –

    I wish to reiterate what both Roy and Andrew said.

    Unlike many people here, your diagnosis is new. It appears that many
    of us have been dealing with this for a number of years. Learning
    contradictory information is helpful, but as Roy implied, much of it
    is contradictory.

    I recommend that you find a doctor you trust. Perhaps your family
    doctor, perhaps an endocrinologist. In addition, most insurance plans
    have a diabetes management plan where you can talk to a nurse, and
    they can provide you with all sorts of basic information.

    This major problem with a new diagnosis (of diabetes or anything else)

    is the fear. What IS this disease? What does it mean? If I ignore it
    will it go away? Is there a wonder drug? How do I know the right
    thing? No matter how well meaning all the folks on this list are, each
    human is different — some people here are on insulin, some on many
    drugs, some on just one. Some people have complications, some do not.

    So LEARN — go the library and read books on what the disease is, and
    what the different "experts" say. If you find a diet plan you want to
    try, be it Atkins, Zone, Bernstein, etc, commit to trying it for 30
    days — keep a food diary with your glucose levels and see if it works
    for you. If it doesn’t - try something else the next 30 days. Make
    yoru doctor your partner in treatment — see which drugs work and
    which don’t. Learn what works for YOU.

    Seek peace — perhaps it is meditation, or walking in the park, or
    taking long baths — something quiet.

    Consider exercise — it helps everything. If you can’t walk a mile,
    walk a block: keep a log, and work up. As you lose weight and
    exercise, that will become easier, and ANY diabetes program you are on
    is enhanced by exercise. Start slow, be proud of your progress.

    And keep the faith!

    Jessica

  12. Neva Marjory Says:

    Hi there Jim. My name is Lisa and I am days away from finishing my
    first month on the spit. Not too bad. I have lost a few pounds but
    my BG numbers are still like violent mood swings.

    For me, getting used to shooting up was the hard part. For the first
    couple weeks I would break out in a cold sweat while shooting the
    spit. After a couple bruises and taking a long hard look at myself
    in the mirror to identify areas to stay away from, I am doing much
    better.

    During my first week or so, the nausea, headache, and jitters were
    breathtaking. They all subsided and now I hardly notice anything
    except the inability to eat as much as I used to. I have also
    noticed that food often tastes either too salty or too bland.


    My diabetes educator told me to shoot spit right before my first
    bite. Over the past couple weeks I have been experimenting with the
    timing. I seem to have better results with my appetite and satiation
    when I shoot spit about 30 - 40 minutes before I eat.

    Next month I am going to figure out how to travel with the spit. I
    have been trying to approach this as some kind of adventure or
    science experiment. So far so good. I hope you will have a good
    experience too.

  13. Neva Marjory Says:

    Hi,

    I am on Byetta 10 mg 2x a day, avandamet (when I can get it) 10000mg
    2x a day. I am also on children’s asprin, blood pressure and
    cholesterol meds for precautionary terms. I check my sugar about 2x a
    day.

    I have a lot of weight I need to lose. My mother and father are both
    diabetic and have been and gone through gastric by pass surgery and
    have become much healthier. I joined this group to get ideas on
    things that work for others and support. I usually don’t talk about
    my diabetes much since I still wish I could deny it. So, I may not
    post a lot.

    Shannon

    Florida

  14. Irwin Mayme Says:

    Hi, Shannon, and welcome to the group.

    I believe a majority of us go thru diabetes denial. I know I did. Who
    wouldn’t want it to magically disappear one morning??!!! <g>

    We learn from one another and you’ll learn a lot from folks here.With
    time you may surprise yourself and start posting. The lizard does that
    to you. <smile>

    Your Gila friend,

  15. Neva Marjory Says:

    Thanks Janie.

    How long can I really deny it though? I know that the medicines are costing a
    arm and a leg even with my insurance. I just get so disgusted that every time I
    walk into my Dr’s appt its a stern lecture and increase of meds.

    So if anyone has any helpful websites or advice send it on. I dont mind being
    a guinee pig. I recently found the onetouchgold.com website and have been trying
    some of there diet receipes. I have to admit though that diet has always been
    one of the worst 4 letter words around.

    Yeah, I joke about my lizzie pit all the time. Then I tell them that there
    isnt enough sun to bask my lizzie turning skin.

    Shannon

    I believe a majority of us go thru diabetes denial. I know I did. Who
    wouldn’t want it to magically disappear one morning??!!! <g>

    We learn from one another and you’ll learn a lot from folks here.With
    time you may surprise yourself and start posting. The lizard does that
    to you. <smile>

    Your Gila friend,

    Janie

    [Non-text portions of this message have been removed]

  16. Neva Marjory Says:

    Thanks Shauna. I will check them out.

    Shannon

    Also you can check your carb/fat/protein balance at www.fitday.com to see
    how you food breaks down - and how many calories you are eating…

    Just some things that I have found helpful.

    Shauna :)
    [Non-text portions of this message have been removed]

  17. gaynell140 Says:

    welcome shannon
    this is a great group and we are
    all in this mess called diabetic together
    and we learn from each other
    again welcome

    Hi, Shannon, and welcome to the group.

    I believe a majority of us go thru diabetes denial. I know I did. Who
    wouldn’t want it to magically disappear one morning??!!! <g>

    We learn from one another and you’ll learn a lot from folks here.With
    time you may surprise yourself and start posting. The lizard does that
    to you. <smile>

  18. Murray Arleen Says:

    Hi, Shannon… I love that name. My daughter-in-law is named Shannon,
    and she’s one of the sweetest people in this whole entire world! :)
    I’m sorry you had to join the world of diabetics, but I’ve come to
    realize that, in the grand scheme of things, it’s not the worse thing to
    happen… if we come to terms and deal with it. It looks to me like your
    moving in the right direction. You’ve joined a great group to help you
    cope, you’re on Byetta (yea for the lizard!), you’re taking other meds
    to keep this disease from progressing, and you are fighting the denial
    that the majority of people diagnosed with any chronic disease go
    through. And last but not least, you’re from the great state of Florida.
    Yeppers, looks like a keeper to me. :)
    Cheryl from Florida


    Hi,

    I am on Byetta 10 mg 2x a day, avandamet (when I can get it) 10000mg
    2x a day. I am also on children’s asprin, blood pressure and
    cholesterol meds for precautionary terms. I check my sugar about 2x a
    day.

    I have a lot of weight I need to lose. My mother and father are both
    diabetic and have been and gone through gastric by pass surgery and
    have become much healthier. I joined this group to get ideas on
    things that work for others and support. I usually don’t talk about
    my diabetes much since I still wish I could deny it. So, I may not
    post a lot.

    Shannon
    Florida

  19. Neva Marjory Says:

    I’m a 36 yr old type II diabetic male. (for >15 yrs) I started
    Byetta about two months ago, and even though I was doing fine on 5
    mcg, I went to 10 mcg for the added weight loss this month.

    I’ve lost close to 20 lbs so far (I’m very close to breaking the 300
    lb barrier– I’m 6′3" tall), but I also decided to start dieting along
    with the Byetta. Actually the Byetta helps a lot because I’m not ever
    hungry. I’m not talking about stress eating– this can be done right
    though the Byetta and still leave you with bad sugars. So be careful.

    But if you really try to cut down and eat right, the medicine is
    wonderful. Actual, real, cravings are almost non existant. Stress
    ones are still very real for me, though and still have to be dealt with.

    Anyway, I didn’t see too many encouraging replies (and I can only

    check the group about 1x week) so I’d figure since I’m close to your
    age that, the medicine if used correctly can really help.

    Good luck.

    Fred

  20. Neva Marjory Says:

    Cheryl,

    Thanks for the email it really made me smile.

    Shannon

    I’m sorry you had to join the world of diabetics, but I’ve come to
    realize that, in the grand scheme of things, it’s not the worse thing to
    happen… if we come to terms and deal with it. It looks to me like your
    moving in the right direction. You’ve joined a great group to help you
    cope, you’re on Byetta (yea for the lizard!), you’re taking other meds
    to keep this disease from progressing, and you are fighting the denial
    that the majority of people diagnosed with any chronic disease go
    through. And last but not least, you’re from the great state of Florida.
    Yeppers, looks like a keeper to me. :)

    Cheryl from Florida

    Hi,

    I am on Byetta 10 mg 2x a day, avandamet (when I can get it) 10000mg
    2x a day. I am also on children’s asprin, blood pressure and
    cholesterol meds for precautionary terms. I check my sugar about 2x a
    day.

    I have a lot of weight I need to lose. My mother and father are both
    diabetic and have been and gone through gastric by pass surgery and
    have become much healthier. I joined this group to get ideas on
    things that work for others and support. I usually don’t talk about
    my diabetes much since I still wish I could deny it. So, I may not
    post a lot.

    Shannon
    Florida

    [Non-text portions of this message have been removed]

  21. Neva Marjory Says:

    Hi, I’m 43 and I was diagnosed as type 2 on 5/3/06. My endo put me
    on 1000mg of Fortamet and then after one month starting me on the
    Byetta on 6/8. I take it before lunch and before dinner as my endo
    said that if I’m not much of a breakfast eater then do it at lunch
    and dinner cause there’s no use wasting the spit if I don’t usually
    eat much anyway. At first I had no side effects but the last few
    days I’ve had somewhat of an upset stomach about 45 min after the
    shot. Pepcid helps some but usually have to wait it out. I already
    take Nexium at night for reflux for the last few years. I am
    concerned about going to the 10 pen as I have a wek long trip
    planned to Vegas on July 17th. My sister and I meet there for a
    week each summer for some one on one sister time with no kids and no
    hubbies. But I don’t want to be miserable fighting nausea most of
    the time especially in the heat there. I guess my question to you
    guys who have been on this a while is should I go ahead and step up

    to the 10 pen or stay on the 5 for another month? Also would it hurt
    anything to try doing two of the 5 shots to see if I can handle the
    10 pen or do it just not work that way? I really want to get the
    most from this as I have about 75 to 80 lbs to lose on my not quite
    5ft 2in body. My endo told me that some people do fine staying on
    the 5 but others need to go up. She told me that if I feel it
    starting to wear off too soon I should probably go up. For the last
    week I’ve had the carb monster in me wanting to be fed. When I first
    started on the spit I didn’t have this but then again I had cut my
    carbs way down since 5/3 when I was diagnosed. And when I went in
    for my follow up on 6/7 I had lost 7lbs on my own. I’m still not
    eating large amounts but I am making poor food choices. Could that
    be part of my stomach upset. Do you guys think the spit is easier
    on the stomach when you are taking in less carbs? Also I saw
    something about sea bands for the nausea, do they work? I know
    everyone is different but I have been lurking and reading posts
    since I was diagnosed and have learned a great deal. By the way
    Gretchen Becker who wrote "The First Year Type 2 Diabetes: An
    Essential Guide for the Newly Diagnosed" recommended this group to
    me when I emailed her to ask if she was planning to do an updated
    version, which she said she is working on now and should be out next
    year. And for any of you that are lurking and trying to decide
    about Byetta and afraid of injecting yourself I was terrified and
    have found that the finger pricking is by far worse. The needle for
    the shot is so slim and short I really cannot feel it. My only
    caution is that if you re-use the needle be very careful they bend
    quite easy and then they do kind of sting so I use one needle each
    day even though the nurse practitioner told me I could get by with
    changing it twice a week. I’m kind of a whimp. I would appreciate
    any advice from you guys.
    Thanks for your ear,
    Saundra

  22. Irwin Mayme Says:

    Hi, Saundra, and welcome to our Gila Club!

    Since I wasn’t having any problems, I was on the 5mcg for only two weeks
    before moving up to the 10. I took two 5mcg injections to use up the
    spit. (I hate to waste anything.<g>)

    If you’re not sure about moving up to the 10 before your trip, I’d think
    it’d be OK to stay on the 5.

    I reuse needles, but only use one a day, for two injections. I
    personally wouldn’t use it more than that as they become very dull,
    especially since they are so thin.

  23. Juliana Jacobson Says:

    Hello everyone, I just joined the group & thought I’d introduce
    myself, my name is Chrissy, I am 33 years old, married with no
    children. I have had diabetes for 12 years. I have been on Byetta for
    4 months. About 3 weeks ago I started getting hives where I give my
    Byetta injections. The hives pop up nowhere else, just where the
    injections are given. Has anyone else had this happen? I called my
    Endocrinologist & she said it is not the Byetta, she said if it was
    the Byetta I would have hives all over my body. Well I am going to
    call her next week again, because it is not stopping. I just think it
    has to be the Byetta, it just seems to much of a coincidence that the
    hives are only happening where I give myself the injections. Anyway, I
    am looking forward to meeting everyone. By the way, other than the
    hives, the Byetta is working great on me. I was on insulin before the
    Byetta. Now I am completely off the insulin, I am on metformin & 5mg
    of Glipizide & my blood sugar readings are great. I have lost 27

    pounds & my cholesterol is down from 233 to 157.
    HUGS
    Chrissy

  24. Debra Willene Says:

    someone on the group had a problem with a rash or hives at injection. I
    think they quit taking the injections for a few weeks then went back to
    see if the hives resumed. I dont remember the outcome tho.
    Hopefully they are still around.

  25. Hung Perkins Says:

    Greetings all!

    I’m Jessica - 29 (soon to be 30 *blah*) - living in Manheim, PA (USA). I’ve
    been diagnosed as diabetic for about two years now and have struggled with
    my numbers and weight gain/loss.

    I am currently averaging in the upper 200’s and 300’s and that’s WITH 1000mg
    metformin twice a day and 10mg glucotrol twice a day.

    So, finally, I went ot see my doc yesterday and really told him how I was
    feeling and asked about the possibitlity of Byetta. So, he obliged.

    I am now on the 5mg pen, and just took my second dose this morning.

    So far, nor real side effects other than extreme chills last night - but

    that could be because we keep it pretty cool in the house here and i’m
    pretty stressed on a few things.

    I do have a question - and maybe I don’t want to know. What’s with the
    Gilly, Lizzard Spit, etc.

    I feel I’ve missed something.. :-)
    Anyways…glad to be here!

  26. Traci Mcgee Says:

    Welcome, Jessica –

    No big mystery, Jessica…it’s part of the Byetta mystique. The main
    chemical precursor to Byetta was first discovered in the saliva of the
    Gila Monster. Hence lizard spit and gilly as pet names. Really!! The
    substance in the saliva only has a lifetime of a few minutes, but
    using biotech methods Amylin Labs changed the molecule slightly so it
    lasts for about an hour in the bloodstream.

    An no reason to be queasy about having to kiss a Gila Monster; the
    stuff is made artificially in a factory/lab using DNA techniques. It
    has tobe injected because if taken as a pill, it would be destroyed in
    the digestive tract.

    Now you know. <wink>

    Gary

  27. estela_130 Says:

    Andrea wrote:
    What someone asked me, and I couldn’t answer, was how in the world some
    reasearcher even THOUGHT of looking at lizard spit for a diabetic drug or
    something related to it? Anyone?

    The researcher’s name was John Eng. There’s a good article about him and his
    Gila Monster research at
    www.signonsandiego.com/news/business/20050429-9999-1b29amylin.html

    Nancy

  28. Traci Mcgee Says:

    Pam William wrote:
    > My teenage boys looked at the picture of the Gilla monster when I was
    researching Byetta. They have the funniest routine. After hearing me complain
    about the cost. They said "You know mom why it is so expensive?" I said why.
    They answered that it takes a lot of time and effort to teach all the lizards to
    spit in the small hole in the end of the pen. it does add a bit of humor to the
    day.
    >
    >

    Thanks for the chuckle, Pam!

    What someone asked me, and I couldn’t answer, was how in the world some
    researcher even THOUGHT of looking at lizard spit for a diabetic drug or
    something related to it? Anyone?

    (This is also the person who wonders who the first person was who was
    brave enough to try eating a raw oyster - he doesn’t think they’re very
    food-like, although I love ‘em ;@)

    Andrea Frankel (andreafrankel at sbcglobal dot net)

    "wake now! Discover that YOU are the song that the morning brings…"

  29. jonathon_1600 Says:

    With regard to how this dr. researched the connection to diabetes control and
    lizard saliva. I read that this lizard rarely eats, maybe once or twice a year.
    It sparked an interest in researchers to examine how this is possible. The
    digestive process is very slow in this lizard and apparently this is true when
    we take this med. The slower the digestion the less glucose sent to the
    bloodstream.

  30. Neva Marjory Says:

    maybe he was the same guy that first thought up smoking pot. or eating
    mushrooms. lol
    just kidding :)
    jodi

  31. Neva Marjory Says:

    I’m kind of a newbie. I was diagnosed 3 years ago but I never really
    controlled my sugars besides taking my glucophage and actos daily. A
    month before starting to take byetta I started keeping a log of my
    bs’s. It scared me, hardly ever under 200 and usually closer to 300’s.
    I’ve been on byetta now for 3 weeks and I have hope again. I get so
    excited seeing my numbers so low. It has sparked a drive inside of me
    to take care of myself so that I can be around for my kids. I have a
    long time since I in my early thirty’s. One question, what should be
    my target BS level? What should I consider low or high? What is
    optimum level.

  32. Saul Ma Says:

    Welcome,

    My doctor told me that the optimum fasting bg is now 90-99 per recent changes
    in the ADA recommendations. According to what I have read, 70 is counted as a
    very low bg.

    Right now, my morning fasting bg runs between 120 and 130. Still working,
    however, on getting it lower in the am. Of course, I get up pretty early so on
    days I can sleep later (like 7 or 8 am) then my morning fasting totals are less.
    During the day, I have better control and usually fall about 89-100. I don’t
    like how I feel when I hit 100 but figure this too shall pass as it is my body
    adjusting to the "normal" levels.

    From what I understand, the ADA now considers 120 to 139 to be pre-diabetic
    and anything over 140 diabetic. This is a change from 1999 when I went to the

    doc and was told that at 140 I was pre-diabetic.

    You should also ask, if you are not already on a blood pressure medicine,
    about getting one. While you blood pressure may be fine, research is finding
    that by keeping the bp low, you protect your kidney’s. These medicines are
    called "ACE INHIBITORS".

    If your bp is fine, you do have to monitor yourself so you don’t get dizzy. I
    have had that happen a few times

    Have a good one.

    Melodie

  33. Louella Danelle Says:

    Blood sugars should be between 70 and 110 according to my doctor. I don’t worry
    unless I dip below 65, or go above 150. Doctors have different goals for
    patients, but those are mine…

    Good for you to be taking it seriously! And the Byetta seems to be a miracle
    drug!

    I’m kind of a newbie. I was diagnosed 3 years ago but I never really controlled
    my sugars besides taking my glucophage and actos daily. A month before starting
    to take byetta I started keeping a log of my bs’s. It scared me, hardly ever
    under 200 and usually closer to 300’s. I’ve been on byetta now for 3 weeks and I
    have hope again. I get so excited seeing my numbers so low. It has sparked a
    drive inside of me to take care of myself so that I can be around for my kids. I
    have a long time since I in my early thirty’s. One question, what should be my
    target BS level? What should I consider low or high? What is optimum level.

  34. Mari Ellis Says:

    hi–I am Ravyn, 45 yrs old, about 100 pounds overweight from 10 years
    of chronic illness (I have the genetic blood disorder Porphyria which
    means a very touchy liver and has resulted in DM2.) Married, no
    children, 4 cats and one dog who is my seizure-trained service
    animal. I have been on Byetta for one month and was not able to get
    the 5 dosage up to twice a day because of the nausea. So I am on my
    2nd 5 pen and trying to get the dosage to twice a day. Ginger helps a
    little. Also I had the worst sinus infection of my life for the
    entire time I have been on it. I still can’t smell or taste, and I am
    hoping this goes away soon because I will not live a happy life if I
    can’t smell anymore.

    I do not care for food since the Byetta, take two or three bites of a
    meal and have to stop. I bloat like I am pregnant. The food stays in
    my stomach for too long also–acid reflux is a problem now. And the

    injection site–abdomenal–stings like a bee-sting. I am also
    freezing all the time and I never was cold before. I have not noticed
    any weightloss yet. I certainly hope these side-effects go away soon.
    I am exhausted and feel yucky all the time. I started Byetta after 6
    months of ER visits and projectile vomitting and ‘aggressive’
    diarrhea from metformin and it’s combinations. I was also RXd for
    Glyburide and Avandia which I am not taking because of the Avandia
    scare–I did start to have heart and PPH symptoms, and Glyburide is
    on the Unsafe list of drugs for Porphyria but my doctor chooses to
    ignore it. I did not see that they were helping anyway. Seems like 6
    months is long enough to try something out and determine if it is
    working or not.

    My fasting glucose is between 140-180 no matter what I do, and even
    on the Byetta -so far- it has not been any different. My post-
    prandial is usually about 20 points lower than the fasting. To
    prevent liver cancer (have had three family members with Porphyria
    die of it in the last 10 years after being DXd with DM2 and
    aggressive BG lowering) my blood glucose needs to be about 120-150 to
    keep the Porphyria in check, but again this is something my doctor
    chooses to ignore. As far as I know my BG was never above 280 at any
    time before I ever even started on any diabetic medications. But I
    had a Porphyria attack 3 years ago and had to go on Glucose Infusion
    and my BG never came down to ‘normal’ again after the attack.

    So here I am…and I do so hope I can adjust to this Byetta, I really
    want it to work! But I also want to feel better again–tired of this
    nausea.

    One question for now—how do you take the Byetta before 2 larger
    meals if you can’t eat?

  35. Goldie Rana Says:

    Nessie, you might want to purchase some Extend Bars to keep by your bed.
    They are not for treating hypoglycemia but can help to control your blood
    sugars for up to 9 hours when used as a bedtime snack. Are these lows with
    the 5mgc Byetta pen? If not, you could always ask your physician to try the
    5mcg to see if you have fewer night time lows.

  36. Goldie Rana Says:

    Nessie, the Extend Bars are not available at grocery stores (at least not
    here in Alaska) but I’m pretty sure I’ve seen advertisements that Walgreens
    has them. I ordered mine directly from the manufacturer. Go online to
    www.extendbar.com for more info. They have an intro offer of 15 bars of
    your choice for only $15.99 (free shipping on first order) and they are much
    tastier than an Atkins Advantage or Glucerna snack bar. They do contain
    carbs but supposedly it is a slowly digested kind suitable for diabetics.

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