Glucose Monitors
My new endo gave me a BD Logic Monitor. The refills strips were so
expensive even with insurance ($70 for 300 strips). Today I received a
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My new endo gave me a BD Logic Monitor. The refills strips were so
expensive even with insurance ($70 for 300 strips). Today I received a
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May 21st, 2003 at 1:42 pm
–
Rebecca
May 21st, 2003 at 6:15 pm
Thanks for the link.
I have a One Touch Ultra and really like it. My insurance company is
offering me a new meter and two of the choices are the One Touch Ultra Smart
and the Freestyle Flash. I have a couple of boxes for the One Touch still
left so it’s no rush to pick - The Ultra Smart sounds cool and will use the
strips I have (hubby calls me the "data queen" and the Ultra Smart offers a
lot of data!) but the Flash is smaller, has 4 alarm settings (I’m always
forgetting to test post-prandials) and with the backlit screen and the
lighting on the strip, that sounds pretty handy!
Decisions, decisions….
Sherry
May 21st, 2003 at 11:28 pm
I used to have a One Touch, which died, and am currently using the
Freestyle. I choose the Freestyle because, at the time, it required a
much smaller blood supply than the One Touch. I’m impressed by both.
May 22nd, 2003 at 6:54 am
know this might sound wierd.. but did youi get a mailing from One Touch
saying that if you were uncomfortable with the chance of changing the
setting from mm/l to mmol or soemthing you could exchange it for one that
doesn’t change? i’m asking because if you DID, that is how i got the Ultra.
they asked which i wanted . or if you are part of the Gold club you usually
can change to.
just a thought.
on that note, i hve some One Touch Basic strips (a whole box of 100) that
have never been opened. stupid urgent care dr gave my husband the wrong
prescription and he didn’t know it till he got home. no, Walgreens won’t
take them back. Let me know if you want them. you pay shipping charges.
please don’t just get them ‘because’ but if you really are having trouble
paying for strips if you know what i mean.
Rebecca
May 22nd, 2003 at 10:59 am
I just got the One Touch Ultra and the Ultra Smart. Haven’t tried them yet so
the jury is out on those two. I did use the Freestyle Flash and I hated it. Got
so many inaccurate readings, I gave it away. I do love the Glucometer Elite, but
it is a little too big and has a slow read. I love the way they package the
strips and how they wick up the blood. I still find that Diabetes mall has the
best prices on strips.
Leslie
—– Original Message —–
I have a One Touch Ultra and really like it. My insurance company is
offering me a new meter and two of the choices are the One Touch Ultra Smart
and the Freestyle Flash. IDecisions, decisions….
Sherry
May 22nd, 2003 at 6:13 pm
I like my One Touch Ultra. I have tried other but I won’t give up my One
Touch Ultra, very little blood, I can test before I go to my doctor for lab and
my reading will be the same, I did not like the freestyle or the precision
May 22nd, 2003 at 8:03 pm
There was a letter that the setting could change if the meter was dropped
and to be sure to check it. Never had any problems though. They gave me a
free upgrade from my OneTouch to the Ultra when the Ultra first came out.
Last year I had a fantastic insurance program and got a bunch of strips
then. I have a lot stocked up - hopefully I can use them all before they
expire! That’s why I don’t feel in any rush to make the decision about
which meter.
S.
know this might sound wierd.. but did youi get a mailing from One Touch
saying that if you were uncomfortable with the chance of changing the
setting from mm/l to mmol or soemthing you could exchange it for one that
doesn’t change? i’m asking because if you DID, that is how i got the Ultra.
they asked which i wanted . or if you are part of the Gold club you usually
can change to.
just a thought.
on that note, i hve some One Touch Basic strips (a whole box of 100) that
have never been opened. stupid urgent care dr gave my husband the wrong
prescription and he didn’t know it till he got home. no, Walgreens won’t
take them back. Let me know if you want them. you pay shipping charges.
please don’t just get them ‘because’ but if you really are having trouble
paying for strips if you know what i mean.
Rebecca
May 23rd, 2003 at 12:21 am
I wonder if you just had a bad meter? Did you contact them about the
problem with the readings? How did you know they were inaccurate? Were they
really off base or did you compare the readings with another meter?
S.
I just got the One Touch Ultra and the Ultra Smart. Haven’t tried them yet
so the jury is out on those two. I did use the Freestyle Flash and I hated
it. Got so many inaccurate readings, I gave it away. I do love the
Glucometer Elite, but it is a little too big and has a slow read. I love the
way they package the strips and how they wick up the blood. I still find
that Diabetes mall has the best prices on strips.
May 23rd, 2003 at 6:57 am
My new endo gave me a BD Logic Monitor. The refills strips were so
expensive even with insurance ($70 for 300 strips). Today I received a
letter from my insurance telling me that I can received strips at $30 for
300 if I choose one of their formulary preferred list.
So now I have to choose a new monitor and would appreciate any feedback on
any of the below:
One Touch Basic/Profile/OneTouch II
One Touch FastTake
One Touch SureStep
One Touch Ultra
Precision Q-1-D
Precision x-tra
Precision Sof-Tact
Freestyle
Thanx in advance.
Pam
[Non-text portions of this message have been removed]
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May 23rd, 2003 at 8:29 am
I compared it to itself and also to another meter. There was a discussion on
another list and several people had the same problems with the Freestyle.
Leslie
—– Original Message —–
I wonder if you just had a bad meter?
Were they
really off base or did you compare the readings with another meter?
May 23rd, 2003 at 12:59 pm
How did you KNOW there was a problem??? i mean did you take it in and check
while doing venious blood? (of course asking the lab tech how to change the
readings as you’re supposed to) or what. the only time i’ve tried to check
meters out it never works.
Rebecca
–
Rebecca
May 23rd, 2003 at 4:28 pm
Sherry,
The alarms on the Freestyle Flash are not that loud. I could barley hear it most
times.
Also, my readings were 30 to 40 points different from my SIL’s One Touch. I know
you are not suppose to compare readings from one meter another but that big a
difference scared me so I compared it to my doctor’s reading. Again a big
difference in the readings. I also compared the reading to a regular Freestyle
meter. Again a huge difference in readings.
I called the Freestyle company & they sent me a new Flash but they readings were
the same.
So when they did A1C & my reading was 7.6 I knew the Flash was not giving me
correct readings. Most of my readings were in the 70 to 98 range & that would
not have given me such a high A1C reading.
I bought another meter & the readings are close to the readings I have with any
other meter except the Flash.
Also if you get the Flash, the lancet device sucks.
This is my opinion & you may not feel the same.
Thanks for the link.
I have a One Touch Ultra and really like it. My insurance company is
offering me a new meter and two of the choices are the One Touch Ultra Smart
and the Freestyle Flash. I have a couple of boxes for the One Touch still
left so it’s no rush to pick - The Ultra Smart sounds cool and will use the
strips I have (hubby calls me the "data queen" and the Ultra Smart offers a
lot of data!) but the Flash is smaller, has 4 alarm settings (I’m always
forgetting to test post-prandials) and with the backlit screen and the
lighting on the strip, that sounds pretty handy!
Decisions, decisions….
Sherry
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
May 23rd, 2003 at 9:38 pm
I love the Freestyle. I’ve been using it for many years and have never has
a problem of any kind with it. I also happen to really like their lancet
device. However I am sure that there are many good meters out there. I
wouldn’t give up my Freestyle and Freestyle Flash for anything.
Jane
May 24th, 2003 at 2:08 am
Interesting, especially since it was so highly rated at the Children With
Diabetes site.
Did you get accurate calibration with the test solution or was that off
also?
Thanks for the input.
Sherry
I compared it to itself and also to another meter. There was a discussion on
another list and several people had the same problems with the Freestyle.
Leslie
—– Original Message —–
I wonder if you just had a bad meter?
Were they
May 24th, 2003 at 6:26 am
Neither is the alarm on my digital watch! I suppose a lot of it depends on
where you’re at at the time it goes off and how much background noise there
is. I really need to find something that will remind me and my kitchen
timer is just too big to carry around with me <rbg>
Wonder why there’d be such a big difference between the Freestyle and the
Freestyle Flash? Did they say anything else about the high readings other
than sending you a new meter? Was this soon after the Flash was released? I
know sometimes original releases of a product have a lot of bugs to get
worked out. So your readings were low? Hmmm…
Of course, you can use any lancet device you want. I have a couple of them
along with about 3-4 different types of lancets. One of them hits really
hard (OUCH!) no matter which lancet I’m using.
Well, heck, it’s free and my One Touch Ultra is working fine for me. I
might as well try it. I saw a picture comparing the size of the Ultra with
the Ultra Smart and I’m not sure I want to carry a bigger meter around. I
think the Ultra Smart would be really good if I was obsessive about control
(I’m not as much as I should be) or a T1.
Thanks,
Sherry
Sherry,
The alarms on the Freestyle Flash are not that loud. I could barley hear it
most times.
Also, my readings were 30 to 40 points different from my SIL’s One Touch. I
know you are not suppose to compare readings from one meter another but that
big a difference scared me so I compared it to my doctor’s reading. Again a
big difference in the readings. I also compared the reading to a regular
Freestyle meter. Again a huge difference in readings.
I called the Freestyle company & they sent me a new Flash but they readings
were the same.
So when they did A1C & my reading was 7.6 I knew the Flash was not giving me
correct readings. Most of my readings were in the 70 to 98 range & that
would not have given me such a high A1C reading.
I bought another meter & the readings are close to the readings I have with
any other meter except the Flash.
Also if you get the Flash, the lancet device sucks.
This is my opinion & you may not feel the same.
May 25th, 2003 at 3:28 am
I know that I’m starting to sound like a sales rep for The Diabetes Mall, but
the Freestyle Flash strips are cheaper there even with their delivery charge.
Leslie
—– Original Message —–
I use the freestyle Flash model. I only wish I could get
strips as cheap as you do. BCBS is hitting me for 75.0
co-pay per 100 strips.
Anything posted in this group is the opinion of the person who posted it.
a.. Visit your group "Diabetes_And_Byetta" on the web.
——————————————————————————
May 25th, 2003 at 11:40 am
Isn’t that almost the price of buying them OTC?
Trish
Anything posted in this group is the opinion of the person who posted it.
Visit your group "Diabetes_And_Byetta" on the web.
———————————
May 25th, 2003 at 9:45 pm
That’s what I was thinking too. Have they given you a reason for this
high pricing? Is there any meter that they support and will provide
strips for at a lower price?
Helen
May 26th, 2003 at 5:28 am
i think it depends on the plan. i know our Bs/Bc FEP plan isn’t like that.
and mail in is always 35$ for 3 months.
have you checked what meter they might cover?
Rebecca
–
Rebecca
May 26th, 2003 at 10:39 am
CG, is this a Medicare Advantage type insurance? With the new drug plan,
if it is, you should see some changes. As lousy as the plan is, it has
got to be better than what they are offering you now. I read the BC
offerings for my area in CA and the $3000 limit no longer stands. There
will be a hole in the coverage, but not as big as the gov’t’s.
I have a Medicare HMO plan, my hole will be $1350 and once I get past it,
meds will be very inexpensive. Strips are supposed to be covered 100%,
tho I do not use their preferred meter. However, I haven’t ordered
strips yet.
May 26th, 2003 at 7:15 pm
All the more reason we some kind of national health insurance. Get the
profit out of it, put the drug companies under gov’t thumbs as they do in
other countries, and get everyone covered. You are paying $650 a month
and still can’t get everything you need.
This patch-work system we now have is going to blow up in our faces, the
signs are there when you look at the aging baby boomers and the sick
children.
I sometimes despair when I think of what has happened to this country.
May 26th, 2003 at 10:55 pm
When Clinton was in office and Hillary was working on a national plan, our
state (Washington) decided to set the pace. Our new health insurance rules
were highly touted as a shining example of what could be done.
How did it help us? Most insurance companies have left the state because
the rules were too prohibitive for them. There are three main insurers for
individual policies now (a couple more popped up but they’re off-shoots of
two of the three and the third one is an HMO that *really* sucks!), costs
are prohibitive and if you don’t qualify based on the questionnaire you have
to fill out when applying (if you have diabetes and hypertension, you’re
pretty much eliminated), you can get insurance through the state insurance
pool - even more $$ with less coverage. One exception - if you’re on COBRA
and it expires, then the health insurers can’t require you complete the
questionnaire and you have to be accepted regardless of your condition. If
you’ve been uninsured for a period of time (can’t remember how long off the
top of my head) and you’re accepted, they can refuse to take care of any
pre-existing conditions for 9 months while you’re paying premiums the whole
time!
If I were in Idaho, I could get an excellent policy at a reasonable rate.
In this state, there’s really no competition between the insurance companies
to keep the rates down. We almost thought we might have to move in order
for me to be insured.
Canadians and Brits love their system - until they have a serious condition
to take care of (kinda like the HMO I mentioned above - it’s great until you
get sick!) So many Canadians are coming down to the US for treatment
because they don’t want to wait a year or more for what the government
considers "elective" surgery (bypass is elective????). We need reform but a
national health plan is *not* the way to do it!
Another issue that needs to be addressed is *how* people use our health
care. You don’t need to go to the doc for every little cold or sore throat
or bump on the skin and you definitely don’t need to go to the ER for
non-urgent medical care. I used to work in medical records in a local
hosptial and would you believe a woman came to the ER because she broke a
fingernail and it hurt???
Sherry
All the more reason we some kind of national health insurance. Get the
profit out of it, put the drug companies under gov’t thumbs as they do in
other countries, and get everyone covered. You are paying $650 a month and
still can’t get everything you need.
This patch-work system we now have is going to blow up in our faces, the
signs are there when you look at the aging baby boomers and the sick
children.
I sometimes despair when I think of what has happened to this country.
May 27th, 2003 at 8:09 am
Somewhere along the line Americans decided they were entitled to see a
doctor or go to ER for every little complaint. In fact, many people
without insurance use ER as their only doctor, making it difficult for
people with emergency needs to get seen quickly.
I have used ER for myself five times in my life. Two visits for chest
pains that turned out to be pleuritis and pneumonia, chest pains that
went into my shoulder with no cause being found (I was without insurance
at the time and that visit cost a fortune, I was kept overnight at the
county hospital and it took a couple of years to pay off everyone), and
tetany, twice, after cancer surgery. When the ER doctor told me I would
be back at least another four to six times, I told him, no way. I went
to my doctors and demanded preventative treatment.
The tetany visits took about fourteen hours from walking into the
hospital to completing treatment. People do this on purpose?
If we had coverage for people who cannot pay for it themselves, ie the
working poor, ER would not be so overwhelmed. (Some insurance companies
are now charging high fees for ER visits that do not result in a hospital
stay.) Here in my county the local gov’t is closing down about half of
their health treatment facilities; they have already closed the county
hospital.
Additionally if insurance coverage were removed from employment, losing a
job would not result in losing coverage. Happily we were able to pay for
COBRA, which will take my husband to Medicare for permanent disability.
But how many can? Believe me, it is hard for us too.
What’s the answer? Some sort of universal coverage, more usage of nurses
and PAs for minor problems, education as to what constitutes a need for
medical treatment, wellness clinics for education on home care for
conditions like diabetes, probably a hundred more things. One thing for
sure, our present system is very costly and not terribly efficient.
May 27th, 2003 at 10:57 am
When I was buying needles, my co-pay was $20, and the needles were like $20.27
retail. It was kinda frustrating, saving al of 27 cents. I tried generic, but
I wasn’t as pleased with the needles themselves.
Trish
88-90.00 per qty100 is the normal lowest cash price I’ve
found locally.
Anything posted in this group is the opinion of the person who posted it.
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———————————
May 27th, 2003 at 6:30 pm
what about people like myself. i worked hard all my life and now at 45 find
myself unable to work due to illness. i have had no income in 16 months. i have
not been awarded disability. am not eligible for medicaid and certainly couldn’t
afford private insurance if i could find some one who would insure me. i fall
thru one of the many cracks… my meds cost over $700 a month so i go without.
Phil
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
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Visit your group "Diabetes_And_Byetta" on the web.
———————————
May 27th, 2003 at 9:24 pm
Instead of going without, why not investigate what’s
available. Obviously you have a computer, here’s something
I found in about 2 minutes of searching:
"Drug Manufacturers are giving away medications to those who qualify. The
top 30 pharmaceutical companies generously make their drugs available for
free to those who have a hardship, and need assistance."
I’d suspect that many or all of the medicines that you
need are really available free or at a very low cost
directly from the manufacturer. This is reality, you made
choices earlier in your life so that now, when most needed,
you can’t take care of your medical needs. Don’t be
looking for someone else to take up the slack, when in
truth you can do it yourself.
JMO
Steve
—– Original Message —–
May 28th, 2003 at 1:58 am
Somebody sent this info to me, maybe it will help
you.
1) www.needymeds.com and
2) 1-888 -477 -2669 the Partnership for
Prescription Assistance is a FREE clearinghouse
for information for about 475different assistance
programs(private, public, and industry), covering
more than 2,500 Brand Name,and Generic
medicines.It is both web based and phone based.if
your doctor is interested in this program to help
you.copy this and bring it to your doctor’s
office.
there is no charge for the entire service -the
Pharmaceutical Research & Manufacturers of
America (PhRMA)and Thomson PDR, publisher’s of
the Physician’s Desk Reference are
pleased to provide you with this important
information on the
Partnership for Presription Assistance.
Brenda
Live, Love, Laugh
May 28th, 2003 at 5:38 am
Phil, we have enough income to cover COBRA, now just for my husband. I
have graduated to a Medicare HMO, which means I am going to go from
paying about $1500 a year to at least $3000 for medication. Higher
co-pays, that donut hole and some of my meds are not on the formulary.
Even actos, which is, is going to cost about $250 every 90 days.
Between this bottomed out economy and these high medical costs, we no
longer have discretionary money. The difficulty here is not in forgoing
dining out, it is that we live in CA, my family lives in NJ and my
husband’s lives in TX.
At that I am very grateful for my lifelong habit of thrift and for what
we have. But I live in an area where many people work for WalMart and
the state provides their health care, but the doctors want no part of it.
Moderate health insurance for a family would run $400 to $500 a month,
depending on age. When the two wage-earners are making minimum, or
barely above, they just don’t have the money, yet they might not qualify
for any assistance. My husband worked in the construction industry,
non-union, this area is not unionized, and he didn’t have health
insurance until 1998. Good thing he didn’t get sick.
On top of it all, housing is out of sight.
If we do not do something for people, they are going to die in droves
from conditions that could have been halted when they began.
May 28th, 2003 at 11:37 am
you know it STINKS that people in this country can not afford their life saving
medications!
We are SUPPOSIBLY the RICHEST country in the world!!! It just pisses me off,
sorry!
Phil, we have enough income to cover COBRA, now just for my husband. I
have graduated to a Medicare HMO, which means I am going to go from
paying about $1500 a year to at least $3000 for medication. Higher
co-pays, that donut hole and some of my meds are not on the formulary.
Even actos, which is, is going to cost about $250 every 90 days.
Between this bottomed out economy and these high medical costs, we no
longer have discretionary money. The difficulty here is not in forgoing
dining out, it is that we live in CA, my family lives in NJ and my
husband’s lives in TX.
At that I am very grateful for my lifelong habit of thrift and for what
we have. But I live in an area where many people work for WalMart and
the state provides their health care, but the doctors want no part of it.
Moderate health insurance for a family would run $400 to $500 a month,
depending on age. When the two wage-earners are making minimum, or
barely above, they just don’t have the money, yet they might not qualify
for any assistance. My husband worked in the construction industry,
non-union, this area is not unionized, and he didn’t have health
insurance until 1998. Good thing he didn’t get sick.
On top of it all, housing is out of sight.
If we do not do something for people, they are going to die in droves
from conditions that could have been halted when they began.
Helen
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
May 28th, 2003 at 10:13 pm
Sherry
May 29th, 2003 at 3:08 am
COBRA cost us just under $500 a month; how many out of work people can do
that? When Joe suddenly became disabled, we had no consumer debt to
worry about, he received disability, I have SS, and we have earnings from
investments, so we managed.
Diabetes is an expensive disease, even with insurance. Devastating
without. The requirements for assistance from the pharma companies can
be very restrictive; I was turned down for byetta because I had health
insurance, even tho it had no name brand coverage. As it happens, I
chose, there’s that word again!, to go off it before the turn down.
However, if I wanted to stay on it, in the face of being turned down, I
would have discontinued it. Even now, it is not covered by my insurance.
In a rich country like the US, we should not have to make these choices.
I have to choose between seeing my family and getting my meds. Others
have to choose between eating, paying the rent, or paying the utilities
and their meds.
May 29th, 2003 at 8:43 am
you know it STINKS that people in this country can not afford their life
saving medications!
We are SUPPOSIBLY the RICHEST country in the world!!! It just pisses me off,
sorry!
Phil, we have enough income to cover COBRA, now just for my husband. I
have graduated to a Medicare HMO, which means I am going to go from
paying about $1500 a year to at least $3000 for medication. Higher
co-pays, that donut hole and some of my meds are not on the formulary.
Even actos, which is, is going to cost about $250 every 90 days.
Between this bottomed out economy and these high medical costs, we no
longer have discretionary money. The difficulty here is not in forgoing
dining out, it is that we live in CA, my family lives in NJ and my
husband’s lives in TX.
At that I am very grateful for my lifelong habit of thrift and for what
we have. But I live in an area where many people work for WalMart and
the state provides their health care, but the doctors want no part of it.
Moderate health insurance for a family would run $400 to $500 a month,
depending on age. When the two wage-earners are making minimum, or
barely above, they just don’t have the money, yet they might not qualify
for any assistance. My husband worked in the construction industry,
non-union, this area is not unionized, and he didn’t have health
insurance until 1998. Good thing he didn’t get sick.
On top of it all, housing is out of sight.
If we do not do something for people, they are going to die in droves
from conditions that could have been halted when they began.
Helen
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
a.. Visit your group "Diabetes_And_Byetta" on the web.
——————————————————————————
[Non-text portions of this message have been removed]
Anything posted in this group is the opinion of the person who posted it.
a.. Visit your group "Diabetes_And_Byetta" on the web.
——————————————————————————
May 29th, 2003 at 4:02 pm
CG and Annie, are you disabled enough to qualify for SS disability?
If you have a doctor that will work with you and prepare a report to take
to the interview, you will be miles ahead toward getting disability.
When you fill out their papers, that you get after the telephone
interview, write reams and reams about how your disability has changed
your life, personally and in the area of work.
You take all that with you to your personal interview and, if you feel
you need it, you may bring someone with you. I went with my husband. He
had a high tibial osteotomy, knee surgery, which failed. The doctor
wrote three typed pages explaining Joe’s condition, the failure of the
surgery and why he could not work. The interviewer was very sympathetic
and we heard, in the affirmative, about a month later. To our surprise,
they backdated his claim to the last day that he worked, went forward six
months, and used that as his qualification date. That will make him
eligible for Medicare next June - and he received a settlement! Our
experience was very positive.
May 30th, 2003 at 2:18 am
Well maybe having a vent session will help us! MY TURN MY TRUN!!!
I became disabled shortly after I was married at age 19.
I was unable to work. But in 1998 I started my first real job which kept until
2001
I was unale to keep it becasue of my health. Well….when I went to apply for SS
Disability…
they said no way because of not enough work credits….although I do fit their
deffintion of being disabled…
I do have medicaid so I am greatful for that BELIEVE me…because having only
one income, it does help a lot.
But what gripes me…is there are ppl who don’t need it and they get it all the
time!!!!!
GRRRRRRRRRRRRRR
Have a great day all my "SWEET Lizzard Loving Friends!"
Melissa in Indiana…age 33
Sorry to bring up healthcare in such a venue where we are all in the
same boat of using an expensive medication(s). Personally, I pay a
high price for health insurance and would love to find a better
healthcare system, but national healthcare insurance is not the
answer. Once everyone is covered, where does the government cut
costs? - on doctors, hospitals, researchers etc. We all end up with a
third-world medical system where no one wants to become a doctor. I
want my doctor to have the most expensive car in the parking lot.(Just
kidding, but I hope I made my point.)
Phil
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
May 30th, 2003 at 12:54 pm
Melissa,
What about SSI instead of SSDI? SSDI is based on previously working while
SSI isn’t. My step-son who has uncontrolled seizures has been on SSI for
years since he’s virtually unemployable.
Medicaid is a life saver for him because the seizure meds are so horridly
expensive.
Sherry
Well maybe having a vent session will help us! MY TURN MY TRUN!!!
I became disabled shortly after I was married at age 19.
I was unable to work. But in 1998 I started my first real job which kept
until 2001 I was unale to keep it becasue of my health. Well….when I went
to apply for SS Disability…
they said no way because of not enough work credits….although I do fit
their deffintion of being disabled…
I do have medicaid so I am greatful for that BELIEVE me…because having
only one income, it does help a lot.
But what gripes me…is there are ppl who don’t need it and they get it all
the time!!!!!
GRRRRRRRRRRRRRR
Have a great day all my "SWEET Lizzard Loving Friends!"
May 30th, 2003 at 7:34 pm
i utilize needy meds but unfortunately about half of my meds are not available
thru the mail. quite a few are controlled substance or muscle relaxers that
cannot be sent thru the mail. not even to the doctors offices per federal law
2) 1-888 -477 -2669 the Partnership for
Prescription Assistance is a FREE clearinghouse
for information for about 475different assistance
programs(private, public, and industry), covering
more than 2,500 Brand Name,and Generic
medicines.It is both web based and phone based.if
your doctor is interested in this program to help
you.copy this and bring it to your doctor’s
office.
there is no charge for the entire service -the
Pharmaceutical Research & Manufacturers of
America (PhRMA)and Thomson PDR, publisher’s of
the Physician’s Desk Reference are
pleased to provide you with this important
information on the
Partnership for Presription Assistance.
Brenda
Live, Love, Laugh
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
Illness Andrew Ada Diabetic Position
Visit your group "Diabetes_And_Byetta" on the web.
———————————
May 30th, 2003 at 11:52 pm
very true. and even if you manage to obtain your meds thru a program, they don’t
cover syringes, test strips or anything like that. my only income is foodstamps.
i can’t buy needed medical equipment with those. and many meds are not covered
by the gov’t or company programs. some are for which i am grateful. but tell me
this…what good is a vial of insulin when i can’t afford a syringe to draw it
up with.
Diabetes is an expensive disease, even with insurance. Devastating
without. The requirements for assistance from the pharma companies can
be very restrictive; I was turned down for byetta because I had health
insurance, even tho it had no name brand coverage. As it happens, I
chose, there’s that word again!, to go off it before the turn down.
However, if I wanted to stay on it, in the face of being turned down, I
would have discontinued it. Even now, it is not covered by my insurance.
In a rich country like the US, we should not have to make these choices.
I have to choose between seeing my family and getting my meds. Others
have to choose between eating, paying the rent, or paying the utilities
and their meds.
Helen
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
Illness Andrew Ada Diabetic Position
Visit your group "Diabetes_And_Byetta" on the web.
———————————
May 31st, 2003 at 4:10 am
i am on my third appeal. waiting now for a court date to go before the judge.
my age works against me because i only just turned 45 but i worked my entire
life fromt the time i was 16. i have a hereditary degenerative disease along
with uncontrollable diabetes and pain syndrome. i filed jan 2005 so i am a year
into it. i will get a back settlement if i win. and medicare in 2 years
If you have a doctor that will work with you and prepare a report to take
to the interview, you will be miles ahead toward getting disability.
When you fill out their papers, that you get after the telephone
interview, write reams and reams about how your disability has changed
your life, personally and in the area of work.
You take all that with you to your personal interview and, if you feel
you need it, you may bring someone with you. I went with my husband. He
had a high tibial osteotomy, knee surgery, which failed. The doctor
wrote three typed pages explaining Joe’s condition, the failure of the
surgery and why he could not work. The interviewer was very sympathetic
and we heard, in the affirmative, about a month later. To our surprise,
they backdated his claim to the last day that he worked, went forward six
months, and used that as his qualification date. That will make him
eligible for Medicare next June - and he received a settlement! Our
experience was very positive.
Helen
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
Illness Andrew Ada Diabetic Position
Visit your group "Diabetes_And_Byetta" on the web.
———————————
May 31st, 2003 at 8:24 am
Melissa,
What about SSI instead of SSDI? SSDI is based on previously working while
SSI isn’t. My step-son who has uncontrolled seizures has been on SSI for
years since he’s virtually unemployable.
Medicaid is a life saver for him because the seizure meds are so horridly
expensive.
Sherry
Well maybe having a vent session will help us! MY TURN MY TRUN!!!
I became disabled shortly after I was married at age 19.
I was unable to work. But in 1998 I started my first real job which kept
until 2001 I was unale to keep it becasue of my health. Well….when I went
to apply for SS Disability…
they said no way because of not enough work credits….although I do fit
their deffintion of being disabled…
I do have medicaid so I am greatful for that BELIEVE me…because having
only one income, it does help a lot.
But what gripes me…is there are ppl who don’t need it and they get it all
the time!!!!!
GRRRRRRRRRRRRRR
Have a great day all my "SWEET Lizzard Loving Friends!"
Melissa in Indiana…age 33
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
May 31st, 2003 at 10:24 am
Social Security Disability Insurance. You have to have worked to be eligible
for that. There’s also Supplemental Security Income (SSI) which my step-son
is on and doesn’t require a work history.
Sherry
What is SSDI??????
Melissa,
What about SSI instead of SSDI? SSDI is based on previously working while
SSI isn’t. My step-son who has uncontrolled seizures has been on SSI for
years since he’s virtually unemployable.
Medicaid is a life saver for him because the seizure meds are so horridly
expensive.
May 31st, 2003 at 3:19 pm
Anne, muscle relaxers can go thru the mail, I just got xanax from a mail
order pharmacy. The prescription form is a little different. In order
to get these medications, your doctors would have to work thru either a
local pharmacy (if the manufacturer was willing) or strictly thru the
mail. A triplicate prescription is required and that cannot be faxed.
I would suggest you contact each manufacturer yourself to find out the
exact procedure they require.
May 31st, 2003 at 7:37 pm
My husband was 52 when he applied, his sister was 43. Of course the
conditions are not the same and perhaps the area makes a difference too.
Go in loaded with reports, I mean loaded, from doctors all detailing why
they feel you are disabled and cannot work. If you win, they will
backdate the disability to the last day you worked, go forward six
months, and that will become your qualifying date. Your settlement will
go back to that date, and your eligibility for Medicare will be counted
from that date.
I don’t think the diabetes, controlled or not, is enough on its own to
qualify you; it wasn’t for me. The pain and the meds, on top of your
degenerative disease should work, particularly if you cannot sit, cannot
stand nor cannot walk for any amount of time. Additionally, it helps if
you can’t think.
June 1st, 2003 at 1:36 am
My husband was 52 when he applied, his sister was 43. Of course the
conditions are not the same and perhaps the area makes a difference too.
Go in loaded with reports, I mean loaded, from doctors all detailing why
they feel you are disabled and cannot work. If you win, they will
backdate the disability to the last day you worked, go forward six
months, and that will become your qualifying date. Your settlement will
go back to that date, and your eligibility for Medicare will be counted
from that date.
I don’t think the diabetes, controlled or not, is enough on its own to
qualify you; it wasn’t for me. The pain and the meds, on top of your
degenerative disease should work, particularly if you cannot sit, cannot
stand nor cannot walk for any amount of time. Additionally, it helps if
you can’t think.
Helen
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
June 1st, 2003 at 5:54 am
Social Security Disability Insurance. You have to have worked to be eligible
for that. There’s also Supplemental Security Income (SSI) which my step-son
is on and doesn’t require a work history.
Sherry
What is SSDI??????
Melissa,
What about SSI instead of SSDI? SSDI is based on previously working while
SSI isn’t. My step-son who has uncontrolled seizures has been on SSI for
years since he’s virtually unemployable.
Medicaid is a life saver for him because the seizure meds are so horridly
expensive.
Sherry
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
June 1st, 2003 at 1:05 pm
SSD — Social Security Disability
SSI: — Supplemental Security Income (or something simular to that)
If applying for SSD I suggest getting an attorney for assistance. I am not
sure how it works but social security pays the attorney. That is what happened
in my Dad’s case. We paid nothing. Just from personal experience if denied do
not refile but appeal as if you are granted it will be retro to the original
application. If refile it goes by the new application date.
Melissa,
What about SSI instead of SSDI? SSDI is based on previously working while
SSI isn’t. My step-son who has uncontrolled seizures has been on SSI for
years since he’s virtually unemployable.
Medicaid is a life saver for him because the seizure meds are so horridly
expensive.
Sherry
Well maybe having a vent session will help us! MY TURN MY TRUN!!!
I became disabled shortly after I was married at age 19.
I was unable to work. But in 1998 I started my first real job which kept
until 2001 I was unale to keep it becasue of my health. Well….when I went
to apply for SS Disability…
they said no way because of not enough work credits….although I do fit
their deffintion of being disabled…
I do have medicaid so I am greatful for that BELIEVE me…because having
only one income, it does help a lot.
But what gripes me…is there are ppl who don’t need it and they get it all
the time!!!!!
GRRRRRRRRRRRRRR
Have a great day all my "SWEET Lizzard Loving Friends!"
Melissa in Indiana…age 33
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
a.. Visit your group "Diabetes_And_Byetta" on the web.
——————————————————————————
[Non-text portions of this message have been removed]
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
Illness Andrew Ada Diabetic Position
Visit your group "Diabetes_And_Byetta" on the web.
———————————
June 1st, 2003 at 6:48 pm
SSD — Social Security Disability
SSI: — Supplemental Security Income (or something simular to that)
If applying for SSD I suggest getting an attorney for assistance. I am not
sure how it works but social security pays the attorney. That is what happened
in my Dad’s case. We paid nothing. Just from personal experience if denied do
not refile but appeal as if you are granted it will be retro to the original
application. If refile it goes by the new application date.
Melissa,
What about SSI instead of SSDI? SSDI is based on previously working while
SSI isn’t. My step-son who has uncontrolled seizures has been on SSI for
years since he’s virtually unemployable.
Medicaid is a life saver for him because the seizure meds are so horridly
expensive.
Sherry
Well maybe having a vent session will help us! MY TURN MY TRUN!!!
I became disabled shortly after I was married at age 19.
I was unable to work. But in 1998 I started my first real job which kept
until 2001 I was unale to keep it becasue of my health. Well….when I went
to apply for SS Disability…
they said no way because of not enough work credits….although I do fit
their deffintion of being disabled…
I do have medicaid so I am greatful for that BELIEVE me…because having
only one income, it does help a lot.
But what gripes me…is there are ppl who don’t need it and they get it all
the time!!!!!
GRRRRRRRRRRRRRR
Have a great day all my "SWEET Lizzard Loving Friends!"
Melissa in Indiana…age 33
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS Illness Andrew Ada
Diabetic Position
a.. Visit your group "Diabetes_And_Byetta" on the web.
——————————————————————————
[Non-text portions of this message have been removed]
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
Illness Andrew Ada Diabetic Position
Visit your group "Diabetes_And_Byetta" on the web.
———————————
[Non-text portions of this message have been removed]
Anything posted in this group is the opinion of the person who posted it.
June 2nd, 2003 at 10:19 am
We did get a little far away from diabetes, I know I did. But, I must
confess, helping others, in whatever way, is very important to me.
However, discussing disability, particularly when diabetes is involved,
or no insurance and ways to get assistance, again including diabetic
meds, are, in my opinion, very much on topic. After all, we are all here
because we are diabetics. So that colors everything in our lives because
our treatment is something we live with 24/7.
June 3rd, 2003 at 1:51 pm
my primary disorder is Ehlers-Danlos syndrome, a collagen defficiency with
degenerative disc disease, ruptured discs, renal failure and uncontrolled
diabetes with neuropathy. 16 months ago i had a hysterectomy for cervical cancer
and my belly promptly burst wide open when the sutures were removed (from the
eds) and i have a 27 inch hernia from hip to hip where my surgery was to close
me back up. i also have developed 2 frozen shoulders and thoracic outlet
syndrome…i can’t sit, stand walk or lie still for more than a few minutes at a
time.i can’t lift for fear of the hernia ripping open and i can’t dress myself
due to the shoulder problems.
Go in loaded with reports, I mean loaded, from doctors all detailing why
they feel you are disabled and cannot work. If you win, they will
backdate the disability to the last day you worked, go forward six
months, and that will become your qualifying date. Your settlement will
go back to that date, and your eligibility for Medicare will be counted
from that date.
I don’t think the diabetes, controlled or not, is enough on its own to
qualify you; it wasn’t for me. The pain and the meds, on top of your
degenerative disease should work, particularly if you cannot sit, cannot
stand nor cannot walk for any amount of time. Additionally, it helps if
you can’t think.
Helen
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
Illness Andrew Ada Diabetic Position
Visit your group "Diabetes_And_Byetta" on the web.
———————————
June 3rd, 2003 at 6:05 pm
(((((((((hugs FOR you!))))))))))))) Golly Gee Wish Lady! You have been put
through the ringer!
my primary disorder is Ehlers-Danlos syndrome, a collagen defficiency with
degenerative disc disease, ruptured discs, renal failure and uncontrolled
diabetes with neuropathy. 16 months ago i had a hysterectomy for cervical cancer
and my belly promptly burst wide open when the sutures were removed (from the
eds) and i have a 27 inch hernia from hip to hip where my surgery was to close
me back up. i also have developed 2 frozen shoulders and thoracic outlet
syndrome…i can’t sit, stand walk or lie still for more than a few minutes at a
time.i can’t lift for fear of the hernia ripping open and i can’t dress myself
due to the shoulder problems.
Go in loaded with reports, I mean loaded, from doctors all detailing why
they feel you are disabled and cannot work. If you win, they will
backdate the disability to the last day you worked, go forward six
months, and that will become your qualifying date. Your settlement will
go back to that date, and your eligibility for Medicare will be counted
from that date.
I don’t think the diabetes, controlled or not, is enough on its own to
qualify you; it wasn’t for me. The pain and the meds, on top of your
degenerative disease should work, particularly if you cannot sit, cannot
stand nor cannot walk for any amount of time. Additionally, it helps if
you can’t think.
Helen
Anything posted in this group is the opinion of the person who posted it.
SPONSORED LINKS
Illness Andrew Ada Diabetic Position
Visit your group "Diabetes_And_Byetta" on the web.
———————————
[Non-text portions of this message have been removed]
Anything posted in this group is the opinion of the person who posted it.
June 3rd, 2003 at 7:52 pm
{{{{{{Annie}}}}}}}
You have had more than your share of problems. I will keep a good thought
for you.
Jane
June 6th, 2003 at 12:17 am
Annie, I would imagine you have a water-tight case for receiving
disability. If you have been turned down before, and I believe you
mentioned you were, I haven’t a clue why. Unless that particular office
was trying to control the number of awards.
I have seen what they call a law judge when I appealed denial of
unemployment, I imagine you will be seeing one too. He was very rigid in
terms of procedure, but I was allowed to speak my case. As it turned out
the other party did not show up and we actually won before a word was
said because of that. But who knew?
As I said before, bring all your records, reports and comments from the
doctors as to why you cannot work. Include not being able to get to a
place of employment in the first place, but stress not being able to
function in any kind of job because of your health.
If you lose the appeal, I believe you still have options; but that is
something you would need to check to be certain. At that point you can
consider an attorney; they work on contingency and get their money from
your settlement. You will need to work out payment details up front
because I think the gov’t will pay the attorney before they pay you, if
you don’t have an agreement in place.
Good luck,